1. Susan matheson

    I know a lovely lady stuck in an old folks home, with motor nurones desease, not much happening for her apart from the days get longer and the outcome for her not very good. Family visit her. But very sad for someone so young. Would like to see if poss something to ocupy her mind and activity etc. help dont know if im doing the right thing here.!!!! But i will vote to stay in the EU.

  2. Claudie Baleydier French Friedreich Ataxia Association A.F.A.F

    I’m French but it’s so important for the rare UK diseases to stay inside Europe

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